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SVP, Patient & Professional Advocacy
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Full-time
- As we continue to advance our industry-leading approach to Patient Advocacy across the enterprise and within the rare disease and biotech ecosystems, we seek an exceptional Senior Vice President of Patient & Professional Advocacy (P&PA) to help shape and direct our efforts in engaging and empowering patients, caregivers, and healthcare professionals.
- Reporting directly to the Chief Patient Advocate, this is a position of influence over the direction and deployment of P&PA's efforts and how the team provides strategic partnership and collaboration across multiple cross-functional workstreams to ensure optimal patient-first thinking that touches every aspect of the company's operations and culture of commitment to the rare disease community.
- The successful candidate must possess energy, creativity, empathy, emotional intelligence, and adaptable thinking prowess.
- Advanced degree or professional credentials preferred (e.g., Genetic Counselor, Registered Nurse, Patient Advocacy Certification Training/PPALS, Allied Healthcare Professional, Social Worker, Public Health, Public Policy, etc.)
- Rare disease experience preferred, knowledge of lysosomal or neuromuscular disorders a plus
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