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Executive Director
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- The Executive Director will provide thought leadership, strategic direction and influence for the success of the Erdheim-Chester Disease Global Alliance mission.
- Support Board Officers in enhancing visibility within the rare disease, medical professional, and patient/family communities.
- Organizational Leadership – Oversee, implement resources, and actively engage in day-to-day operations.
- Fund Development and Public Relations – Create visibility and serve as the ECDGA spokesperson to raise awareness with patient populations, medical providers, and other key stakeholders.
- Establish and maintain long-term relationships with funders, including individual donors, major gifts, corporate philanthropic departments, and foundations.
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