Writer

Hope in Focus | Part-time | RemoteHope in Focus is a 501(c)(3) rare disease advocacy organization supporting a global community of individuals and families living with Leber congenital amaurosis (LCA), a rare inherited retinal disease that causes blindness or severe low vision from birth.We are a small, nimble team based in southeastern Connecticut, working primarily remotely, with occasional in-person participation (approximately 5–6 events or meetings per year).Who We AreHope in Focus sits at the intersection of advocacy and science. We center the lived experiences of the LCA and inherited retinal disease community while translating complex research into meaningful, accessible information. Our work bridges the gap between the people who inform the science and the science that transforms lives.What We’re Looking ForWe are seeking an experienced writer to create one to three stories per month that elevate community voices and explain the science, research, and pathways driving treatments for blindness. This role is essential to advancing our mission through clear, compassionate, and accurate storytelling.The Writer will collaborate closely with the Hope in Focus team and serve as a friendly, informed, and trustworthy voice for the LCA community—reflecting hope, optimism, and care in all communications.Key ResponsibilitiesWrite 1–3 stories per month for the Hope in Focus website and newsletterInterview individuals living with LCA and caregivers to share lived experiencesInterview researchers, industry, and regulatory stakeholders within the LCA communityEnsure consistent voice, tone, and language aligned with the Hope in Focus brandPropose new story ideas and content opportunitiesQualificationsProven writing experience, preferably in nonprofit, healthcare, or science-related settingDegree in communications, journalism, English, or a related fieldStrong organizational skills and ability to meet deadlinesComfortable working independently and collaboratively in a small teamExpertise with AP styleProficiency with Google WorkspaceExcellent interpersonal and interviewing skillsIdeal CandidateMission-driven and eager to learn about rare disease advocacyCurious, thoughtful, and detail-orientedEmpathetic and comfortable speaking with people from diverse backgroundsCommitted to diversity, equity, access, and inclusionPassionate about storytelling and clear communicationCompensationThis is a part-time, contract position. Compensation is provided on a per-story basis.$500–$650 per story (approximately 1,200 words)Rate includes required interviews, research, writing, and up to three rounds of revisionsAdditional revisions or expanded scope may be compensated separately, as agreed in advanceHope in Focus is open to discussing alternate compensation structures (e.g., hourly or monthly retainers) with qualified candidates.